The APSU has conducted surveillance on over 40 different conditions including infectious or vaccine preventable diseases, genetic conditions, mental health disorders, and rare injuries.
An independent Scientific Review Panel considers applications for inclusion of new studies. The applicants must demonstrate the need for surveillance through a sound rationale, clear achievable aims and the likely impacts that will result from the study in terms of generating new scientific evidence to affect change in policy, clinical practice, community awareness, or leading to further research. As reporting is predominantly by paediatricians and paediatric specialists, the condition must be one that is likely to be seen by this group of clinicians, but it must be sufficiently rare so as not to overburden them.
Groups of researchers or clinicians regardless of seniority may apply. Representation within the research group from most Australian states is important - state investigators raise awareness and act as points of contact for their local colleagues. Groups may also consider international collaboration as the APSU is a part of the International Network of Paediatric Surveillance Units - surveillance for Vitamin K deficiency bleeding and Haemolytic Uraemic Syndrome are excellent examples of studies that allowed international comparisons.
Ethics committee approval is required before the commencemnet of the study and all data collected is de-identified.
Contact APSU staff (apsu@chw.edu.au) to discuss the condition and whether APSU is indeed a suitable vehicle. APSU staff provide guidance and advice on the application process, questionnaires and database development.
Guidelines:
Forms