Rare Disease Workshop 2010 Presentations

1. Impacts on clinicians and patients

• Dr Yvonne Zurynski - Rare diseases in Australia: an overview of research and other initiatives
• Professor Adam Jaffe - Impacts on health professionals and health services
• The Walker Family - Living with ChiLD: Children's Interstitial Lung Diseases
• Dr Andrew Knight - Zebras on the common? Rare diseases in general practice
• Lisa Smith - Helping families affected by rare diseases

2. Resources for health professionals and patients

• Professor David Sillence - Benefits of multidisciplinary clinics for rare diseases
• Dianne Petrie - Providing support and education for people affected by rare diseases
• Graeme Stuart -  SNUG camps for children affected by rare diseases: a dose of respite
• Professor Elizabeth Elliott -  National plan for rare diseases