Past Studies

22q11.2 deletion syndrome (JUL 2015 - JUL 2017)

Protocol: 22q11.2
Case Report Form: 22q11.2
Clinical Guidelines: Multisystem features of 22q11.2 


Acute Rheumatic Fever (ARF) (Oct 2007 - Dec 2010)

Protocol ARF 
Questionnaire ARF 


Anaphylaxis following food ingestion (Jul 2002 - Dec 2003)

Protocol ANA 
Questionnaire 


Arthrogyposis Multiplex Congenita (AMC) (Jan 1996 - Dec 1998)

Final Report 
Protocol AMC 
Questionnaire AMC 


CHARGE association (Jan 2000 - Dec 2002)

Protocol Charge 
Questionnaire 


Childhood Conversion disorder (Jan 2002 - Dec 2003)

Protocol Conv
Questionnaire 


Childhood Dementia (May 1993 - Jun 1995)

Final Report
Protocol Dementia 
Questionnaire 


CHILDhood Interstitial Lung disease (chILD) (SEP 2014 - APR 2017)

Protocol chILD
Case Report Form chILD
Online chILD Case Report Form


Chronic Fatigue Syndrome (Apr 2015 - Apr 2016)

Protocol CFS
Case Report Form CFS
Parent/Carer Information Sheet CFS


Complementary and Alternative Medicines (CAM) (Jan 2001 - Dec 2003)

Protocol CAM
Questionnaire CAM 


Congenital adrenal hyperplasia (CAH) (Aug 1995 - Dec 1997)

Final Report
Protocol CAHPROT
Questionnaire (Form A)
Questionnaire (Form B) 


Congenital and neonatal varicella (Mar 1995 - Dec 1997)

Final Report
Protocol
Questionnaire


CRYOPRYIN ASSOCIATED PERIODIC SYNDROME (CAPS) (JuL 2011)

Protocol
Questionnaire



Drowning and near drowning (May 1993 - Dec 1996)

Final Report
Protocol Drowning
Questionnaire 


Eosinophilic Oesophagitis (EoE) (JUL 2013 - JUN 2014)

Protocol EoE         
Case Report Form EoE 
EoE information sheet


Early onset eating disorder (EOED) (jul 2002 - jun 2005)

Protocol EOED
Questionnaire 


Early onset eating disorder 2 (EOED 2) (Feb 2016 - mar 2018)

Protocol: EOED
Case Report Form: EOED  


Extrahepatic biliary atresia (May 1993 - Dec 1996)

Final Report
Protocol
Questionnaire 


Fetal Alcohol Syndrome (FAS) (JAN 2001 - dEC 2004)

Protocol
Questionnaire


Food Protein Induced Enterocolitis Syndrome (FPIES) (JAN 2012 - APR 2014)

Protocol
Questionnaire
Parent Information Sheet


Haemoglobinopathies (HAEM) (JAN 2004 - MAR 2006)

Protocol HAEM
Questionnaire 


Haemolytic Uraemic syndrome (HUS) (JUL 1994 - DEC 2001)

Protocol
Questionnaire HUS 


Hepatitis C virus infection (HCV) (Jan 2003 - Jun 2008)

Protocol HCV
Questionnaire HCV 


Hirschprung disease (Jan 1997 - Dec 2000)

Final Report
Protocol
Questionnaire 


Hyperinsulinaemic hypoglycaemia of infancy (HI) (JAN 2005 - APR 2006)

Protocol HI
Questionnaire HI


Intussusception (IS) (May 2007 - May 2010)

Protocol IS
Questionnaire IS 


Invasive haemophilus influenzae infection (Jan 1998 - Dec 2000)

Final Report
Protocol Hib
Questionnaire 


Kawasaki disease (May 1993 - Jun 1995)

Final Report
Protocol KD
Questionnaire KD 


MICROCEPHALY IN CHILDREN AGED < 12 MONTHS (MCPH) (JUN 2016 - JUL 2018)

Protocol: Microcephaly
Questionnaire: Microcephaly


Munchausen by proxy syndrome (Jan 2000 - Dec 2003)

Protocol
Questionnaire 


Neonatal/Infant Group B Streptococcal Sepsis (GBS) (Jul 2005 - Jun 2008)

Protocol GBS
Questionnaire GBS 


Nephrotic syndrome (Jul 1998 - Jun 2000)

Final Report
Protocol
Questionnaire 


Neuromuscular Disorders of Childhood (NMD) (Jan 2007 - Dec 2009)

Protocol NMD
Questionnaire NMD 


Non Tuberculosis Mycobacterial Infection (Jul 2004 - Sept 2007)

Protocol
Questionnaire NTM 


Pertussis (Jan 2001 - Dec 2001)

Protocol
Questionnaire 


Prader Willi syndrome (Jan 1998 - Dec 2000)

Final Report
Protocol
Questionnaire 


Primary Immunodeficiency disease (PID) (Jan 1997 - Dec 1999)

Final Report 
Protocol
Questionnaire 


Serious Seat Belt Injuries (SSI) (Jan 2006 - Dec 2007)

Abdominal Injuries Severity Scale
Protocol SSI
Questionnaire SSI 


Severe Combined Immunodeficiency syndrome (SCID) (May 1995 - Dec 2001)

Protocol SCIDS
Questionnaire 


Severe Complications of Influenza (Sep 2007)

Protocol and Questionnaire 2007 


Severe Complications of Influenza (Jul 08 - Sep 08)

Protocol and Questionnaire 2008 


Severe Complications of Influenza (May 09 - SEP 09)

Protocol and Questionnaire 2009


Severe Complications of Influenza (JuL 10 - OCT 10)

Protocol and Questionnaire 2010


Severe Complications of Influenza (JUN 11 - SEP 11)

Protocol and Questionnaire 2011


Severe Complications of Influenza (JuL 12 - SEP 12)

Protocol and Questionnaire 2012


Severe Complications of Influenza (JUL 13 - SEP 13)

Protocol and Questionnaire 2013


Severe Complications of Influenza (JuL 14 - SEP 14)

Protocol and Questionnaire 2014


Severe Complications of Influenza (JUL 15 - SEP 15)

Protocol and Questionnaire 2015


Severe Complications of Influenza (JuN 16 - SEP 16)

Protocol and Questionnaire 2016


Severe Complications of Influenza (JuN 17 - SEP 17)

Protocol and Questionnaire 2017


Severe Complications of Influenza (JuN 18 - SEP 18)

Protocol and Questionnaire 2018


SEVERE NEONATAL HYPERBILIRUBINAEMIA OR EXCHANGE TRANSFUSION (SEVERE JAUNDICE - SNH) (APR 2010 - MAR 2013)

Protocol SNH
Questionnaire SNH
SNH Public Information Sheet 


Simple Vitamin D Deficiency rickets (VitD) (Jan 2006 - Aug 2007)

Protocol VitD
Questionnaire VitD 


Subacute sclerosing panencephalitis (SSPE) (JAN 1995 - DEC 1998)

Final Report
Protocol
Questionnaire SSPE  


SUBDURAL HAEMATOMA AND EFFUSION IN CHILDREN < 2YRS (SDH) (JUL 2010 - DEC 2012)

Protocol SDH
Quetsionnaire SDH
Questionnaire Follow Up 12 Months 


SUDDEN UNEXPECTED EARLY NEONATAL DEATH OR COLLAPSE (SUEND) (JAN 2012 - DEC 2014)

SUEND Protocol
SUEND Case Report Form


Systemic lupus erythematosus (SLE) (OCT 2009 - DEC 2011)

SLE Protocol
SLE Questionnaire
SLE 12 Month Follow Up
SLE Public Information Sheet


VARICELLA COMPLICATIONS REQUIRING HOSPITALIZATION (May 06 - Dec 13)

Protocol
Questionnaire


VITAMIN K DEFICIENCY BLEEDING (HDN) (mAY 1993 - DEC 2017)

Protocol: HDN
Questionnaire: HDN